Resources

Serving Loveland, Fort Collins, Greeley, Longmont & areas nearby in Colorado

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National Institute of Neurological Disorders and Stroke (NINDS)

National Institutes of Health
P.O. Box 5801
Bethesda, MD 20824
1-800-352-9424
(301) 496-5751

Conducts and supports research on disorders of the brain and nervous system. Distributes information on topics including Behcet’s disease, dyslexia, headache, multiple sclerosis, pseudotumor cerebri, septo-optic dysplasia, stroke, temporal arteritis (giant cell ateritis) and

National Keratoconus Assistance Foundation (NKCAF)

2607 Rockefeller Lane, Suite 3
Redondo Beach, CA 90278
(714) 404-8690

Provides referrals to eye care specialists best qualified to provide contact lens fittings for patients with keratoconus. Offers financial assistance for treatments and surgeries. von Hippel-Lindau disease.

National Keratoconus Foundation

8733 Beverly Blvd., Suite 201
Los Angeles, CA 90048
1-800-521-2524
(310) 423-6455

Sponsors basic and clinical research as well as a public education program including self-help groups and seminars. Provides information to patients and eye care practitioners.

Ocular Melanoma Foundation (OFM)

P.O. Box 29261
Richmond,, VA 23242
[email protected]

Works to increase awareness, enhance education and research, and provide advocacy among both patients and health care professionals regarding ocular melanoma.

Prevent Blindness America

211 West Wacker Drive, 17th Floor
Chicago, IL 60606
1-800-331-2020
(312) 363-6001

Produces educational materials that address the special needs of senior citizens, agriculture and industrial workers, school teachers and children, nurses, and doctors. Offers guidance regarding current available treatments, eye care facilities and programs, and current eye research findings through the National Center for Sight. Coordinates the Eye Patch Club, a support group for families coping with a child’s amblyopia treatment. Administers a research program to provide small start-up grants to young scientists.

Resources for Rehabilitation

22 Bonad Road
Winchester, MA 01890
781-368-9094

Offers training programs for public and professionals on coping with low vision. Publishes books and materials related to low vision including Living with Low Vision: A Resource Guide

Sjögren’s Syndrome Foundation (SSF)

6707 Democracy Boulevard, Suite 325
Bethesda, MD 20817
1-800-475-6473
(301) 718-0300

Provides support and education for people with Sjögren’s syndrome and information to the medical community through local chapters. Publishes Moisture Seekers (newsletter) and The Sjögren’s Syndrome Handbook. Distributes information on the complications of Sjögren’s syndrome including dry eye (keratoconjunctivitis sicca).for People with Sight Loss.

Stevens-Johnson Syndrome Foundation

P.O. Box 350333
Westminster, CO 80030
(303) 635-1241

Provides information and support for people with Stevens Johnson syndrome and toxic epidermal necrolysis, skin and eye problems associated with adverse drug reactions. Encourages public awareness of adverse reactions to drugs.

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